Resources

Hemophilia Nonprofit Organizations
American Association of Blood Banks (www.aabb.org)
Committee of Ten Thousand (http://www.cott1.org)
Hemophilia Federation of America (http://www.hemophiliafed.org)
The National Hemophilia Foundation (NHF) (www.hemophilia.org)
National Organization for Rare Disorders (NORD) (www.rarediseases.org)
United Virginia Chapter of the NHF (www.vahemophilia.org)
World Federation of Hemophilia (www.wfh.org)

Hemophilia Treatment Centers (HTC)

CDC HTC Directory (http://www2a.cdc.gov/ncbddd/htcweb/index.asp)

Children’s Hospital of The King’s Daughters
601-Children’s Lane; Norfolk, VA 23507
757-668-7000
www.chkd.org

University of Virginia Health System
1215 Lee Street; Charlottesville, VA 22908
434-924-8499

VCU Health Systems;
1250 East Marshall Street; Richmond, VA 23298
804-828-9000
http://www.vcuhealth.org/cvccd/index.html

Hepatitis and HIV/AIDS Organizations
Aids info (http://www.aidsinfo.nih.gov/)
American Liver Foundation (www.liverfoundation.org)
American Association for the Study of Liver Diseases (www.aasld.org)
The Foundation for AIDS Research (http://www.amfar.org/index/htm)
Hepatitis B Foundation (www.hepb.org)
HIV and Hepatitis.com (http://www.hivandhepatitis.com/)
HIV Positive.com (http://www.hivpositive.com/)
National Hepatitis C Coalition (www.nationalhepatitis-c.org)
NHF and the Hemophilia and AIDS/HIV Network for the Dissemination of Information
(HANDI) (www.hemophilia.org/resources/handi.htm)

Important Government Organizations
Centers for Disease Control and Prevention (www.cdc.gov)
National Council on Disability (www.ncd.gov)
National Disability Rights Network (www.napas.org)
National Heart, Lung, and Blood Institute (www.nhlbi.nih.gov)
National Institute of Allergy and Infectious Diseases (http://www3.niaid.nih.gov/)
Office of Disability Employment Policy (www.dol.gov/odep/welcome.html)
U.S. Food and Drug Administration (http://www.fda.gov/)
U.S. House of Representatives (http://www.house.gov/)
U.S. Senate (http://www.senate.gov/)
Virginia General Assembly (http://legis.state.va.us/)
Virginia Hemophilia Advisory Board - www.vipnet.org
Note: The Virginia Hemophilia Advisory Board is a governor-appointed board that advises and assists the Virginia Department of Health in the administration of the Virginia Bleeding Disorders Program. The board includes representations from voluntary agencies interested in hemophilia, hematologists, blood banks/pharmacies, medical schools, hospitals, local public health agencies and the general public. Minutes of their annual meeting are available on www.vipnet.org .

Medical Links
www.medscape.com
www.cbs.healthwatch.com
www.medicinenet.com
www.emedicine.com
www.webmd.com

Other Organizations
American Medical Association (http://www.ama-assn.org/ )
American Society of Hematology (http://www.hematology.org/ )
Camp Holiday Trails (http://www.campholidaytrails.org/ )
Causes-of-Hemophilia (www.causes-of-hemophilia.com )
Coalition for Hemophilia B (http://www.coalitionforhemophiliab.org/ )
LA Kelley Communications (www.kelleycom.com )
Patient Services Incorporated (http://www.uneedpsi.org )

If you have a web site that you would like to add to this page, please email the webmaster at uvc-nhf@earthlink.net and the Public Affairs Committee will review the page and add it (if appropriate).